Please pray for the following request!
This is what Heather has passed along: Andy and I wish we had another good update for you, however we received some extremely bad news from the doctor today. Avila's newborn blood screening test came back indicating that she may have a serious immunodeficiency issue. This is completely unrelated to her stroke, brain hemorrhage and seizures. Her T-cell count was extremely low, at just 195 cells, while the normal count for a newborn is 250. This puts her at serious risk for infection once my antibodies have worn off.
T-cells are white blood cells, which are what our bodies use to fight infection. We were told that we need to call the neonatal immunologist tomorrow to schedule an emergency appointment. The condition they suspect is called Severe Combined Immunodeficiency (SCID). This is an extremely rare genetic disorder that only effects 1 in 100,000 people. It means that, without treatment, Avila will face severe infections her body won't be capable of fighting, which would eventually lead to death. If the immunologist confirms she has SCID, we will have to immediately begin planning for treatment, which includes prophylactic antibiotics, gene therapy and bone marrow transplant(s).
we beg of you to storm Heaven and ask God to make this test result a tragic mistake. We appreciate your continued support through this difficult time.